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The Girls With Too Much Skin

Extraordinary People looks at sisters Lucy and Hannah Betts, and Dana and Lara Bowen, who have the genetic disorder Harlequin Ichthyosis, which makes their skin grow at an abnormal rate. This report follows them in their daily life, including three baths a day to remove excess skin build up.

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  1. to the person that said such nonsense about them being “freaks” and such.you are a terrible person to say such a thing.im sure you are as ugly on the outside as you are in the inside.you need ur ass beat.

  2. A friend of mine has a daughter with this condition and I never knew exactly what was going on.  It’s not one of those things you just bring up out of the blue.  I’m glad to know a ton more information now.  I’ve known about Harlequin Ichthyosis for years but always thought the infants died shortly after birth to this day.  I was not aware there were teatments available.  Very informative.

  3. I felt absolutely terrible for these girls and their families while watching it, but at least they give their lives reason and give every day their best shot.

    Meanwhile, the anonymity of the internet allows absolute scum to post insensitive comments about what they would do differently, or worse yet, make jokes of it ranging from clueless to heartless.  I get a stomach ache just thinking what they or their parents would think to read some of these comments.

  4. These girls and their parents are incredibly brave.  They attest to the overwhelming resilience of the human spirit to push through adversity.

  5. someone will should wait til they’re 18 and do an extremely bloody, violent completely simulated rape and murder scene

  6. I do not think only these girls show too much skin. Have you seen clothing celebrities where these days!?

  7. I do not think only these girls show too much skin. Have you seen clothing celebrities where these days!?

  8. Very sad. Makes me grateful for the life I have.

  9. Very sad. Makes me grateful for the life I have.

  10. They are amazing people who have learned to manage with an unfortunate disease. My heart goes out to them.

  11. Wow that’s a bizarre disease.

  12. Wow that’s a bizarre disease.

  13. Wow. You know the odds are 1 in 4 that you have another child with a horrible, debilitating, very likely deadly skin disorder, but you say, “Eh, fuck it, lets go for it anyway!”

    That’s insane…

    • your comment implies this was a decision they took lightly. one family clearly stated it took them three years to make the decision to have another child.

      • I think what our bearded friend (Zack) means is that it may not be morally right to bring someone into to world only to have a “horrible, debilitating, very likely deadly skin disorder”. A perspective I happen to share with him. I’m not saying its wrong, however. It’s far too complicated

        “Eh, fuck it, it’s been three years – lets go for it anyway!”

      • I think what our bearded friend (Zack) means is that it may not be morally right to bring someone into to world only to have a “horrible, debilitating, very likely deadly skin disorder”. A perspective I happen to share with him. I’m not saying its wrong, however. It’s far too complicated

        “Eh, fuck it, it’s been three years – lets go for it anyway!”

        • I doubt those girls wish they hadn’t been born, and I’m damned certain their parents are happy in their decision.  I worry that to have watched this and miss that only demonstrates how some people cannot understand the emotion of love.

        • I doubt those girls wish they hadn’t been born, and I’m damned certain their parents are happy in their decision.  I worry that to have watched this and miss that only demonstrates how some people cannot understand the emotion of love.

      • I think what our bearded friend (Zack) means is that it may not be morally right to bring someone into to world only to have a “horrible, debilitating, very likely deadly skin disorder”. A perspective I happen to share with him. I’m not saying its wrong, however. It’s far too complicated

        “Eh, fuck it, it’s been three years – lets go for it anyway!”

      • I think what our bearded friend (Zack) means is that it may not be morally right to bring someone into to world only to have a “horrible, debilitating, very likely deadly skin disorder”. A perspective I happen to share with him. I’m not saying its wrong, however. It’s far too complicated

        “Eh, fuck it, it’s been three years – lets go for it anyway!”

  14. Woah, hold on a minute… BOTH dads are named Clive? I think we’ve found the REAL cause.

  15. God damn FREAKS retards getting married and now these monsters are living and breathing
    take the clothes off their backs and give them to a genetically healthy african kid.
    For God’s sake these creatures are nauseating.

  16. God damn FREAKS retards getting married and now these monsters are living and breathing
    take the clothes off their backs and give them to a genetically healthy african kid.
    For God’s sake these creatures are nauseating.

  17. God damn FREAKS retards getting married and now these monsters are living and breathing
    take the clothes off their backs and give them to a genetically healthy african kid.
    For God’s sake these creatures are nauseating.

  18. God damn FREAKS retards getting married and now these monsters are living and breathing
    take the clothes off their backs and give them to a genetically healthy african kid.
    For God’s sake these creatures are nauseating.